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Moebius Syndrome Awareness Day 2016 at Oregon State University

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  • Moebius Syndrome is a congenital neurological disorder that results in weakness or paralysis of the sixth and seventh cranial nerves, resulting in inability to form facial expression. The current study examined the relationship between orientation of describing Moebius Syndrome and the participant ratings of pictures of individuals with Moebius Syndrome of friendliness and capability. The medical model is a description of Moebius Syndrome focusing on symptoms and treatment. The social model is a description focusing on how Moebius affects patient’s lives and social relationships. Participants were then asked to rate pictures of people with Moebius Syndrome in terms of friendliness and capability on a five-point scale. It was hypothesized that participants chosen to participate in the social model would rate the pictures higher on both dimensions than participants in the medical model. Participants were invited to create a sign with what others should know about Moebius Syndrome. These signs were then analyzed for content using Linguistic Inquiry and Word Count (LIWC) software. Signs were separated into medical and social model and compared across five categories. It was hypothesized that signs created after the social model would reflect a higher percentage of social words, whereas medical signs would reflect more medical terms. It was found that there was no significant difference between social and medical model groups in how participants rated pictures in terms of both variables. Participants were asked to rate their knowledge of Moebius Syndrome before and after the intervention on a five-point scale. It was found that knowledge about the condition significantly increased during the course of the intervention. Signs created after partaking in the social model of disability scored significantly higher in the “social” category. Signs created after hearing the medical model of disability resulted in significantly higher in the “medical” and “body” categories. Regardless of model received, participants felt social understanding was significantly more important than finding treatments and cures. The results of this study indicate that informing participants of Moebius Syndrome results in an increase of knowledge. This would indicate that the intervention was successful, regardless of the insignificance between groups on progression of knowledge. Overall, knowledge intervention in a population of college students, faculty and community members results in increased knowledge and positive ratings of capability and friendliness.
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