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Creator:: Hamilton, Jada G., Hutson, Sadie P., Frohnmayer, Amy E., and et al.
Abstract:: Inherited bone marrow failure syndromes (IBMFS) including Fanconi anemia, dyskeratosis congenita, Diamond-Blackfan anemia, and Shwachman-Diamond syndrome are rare genetic disorders characterized by hematologic complications and increased risk of cancer. Patients and their families likely experience obstacles in obtaining sufficient health information given their disorders’ rarity. To investigate this possibility, we...

Creator:: Hamilton, Jada G., Hutson, Sadie P., Frohnmayer, Amy E., and et al.
Abstract:: Inherited bone marrow failure syndromes (IBMFS) including Fanconi anemia, dyskeratosis congenita, Diamond-Blackfan anemia, and Shwachman-Diamond syndrome are rare genetic disorders characterized by hematologic complications and increased risk of cancer. Patients and their families likely experience obstacles in obtaining sufficient health information given their disorders’ rarity. To investigate this possibility, we...

Creator:: Hamilton, Jada G., Hutson, Sadie P., Frohnmayer, Amy E., Han, Paul K., Peters, June A., Carr, Ann G., and Alter, Blanche P.
Abstract:: Inherited bone marrow failure syndromes (IBMFS) including Fanconi anemia, dyskeratosis congenita, Diamond-Blackfan anemia, and Shwachman-Diamond syndrome are rare genetic disorders characterized by hematologic complications and increased risk of cancer. Patients and their families likely experience obstacles in obtaining sufficient health information given their disorders’ rarity. To investigate this possibility, we...
Resource Type:: Article

ScholarsArchive@OSU