“People are all about appearances”: A focus group of teenagers with Moebius Syndrome Public Deposited

http://ir.library.oregonstate.edu/concern/articles/c247dv01d

This is an author's peer-reviewed final manuscript, as accepted by the publisher. The published article is copyrighted by Sage Publications and can be found at:  http://hpq.sagepub.com/.

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  • This focus group study examined the social experiences of 10 adolescents ages 12-17 with Moebius Syndrome, a rare condition involving congenital facial paralysis. Content analysis revealed five themes: social engagement/disengagement; resilience/sensitivity; social support/stigma; being understood/misunderstood; and public awareness/lack of awareness of Moebius Syndrome. Compared to previous research on adults with Moebius Syndrome, adolescents were more likely to experience bullying and social strain. Like adults, teenagers displayed resilience and communication skills. Greater public awareness is key to reducing the stigma associated with this condition, and social skills programs should be developed to support those who struggle with social functioning.
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  • Bogart, K. R. (2015). “People are all about appearances”: A focus group of teenagers with Moebius Syndrome. Journal of Health Psychology, 20(12), 1579-1588. doi:10.1177/1359105313517277
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  • description.provenance : Made available in DSpace on 2014-07-09T18:11:11Z (GMT). No. of bitstreams: 1 BogartKathleenPsychologyPeopleAreAll.pdf: 333819 bytes, checksum: 874bd84df24904564983037ae33eee2f (MD5) Previous issue date: 2014-01-14
  • description.provenance : Approved for entry into archive by Deanne Bruner(deanne.bruner@oregonstate.edu) on 2014-07-09T18:11:11Z (GMT) No. of bitstreams: 1 BogartKathleenPsychologyPeopleAreAll.pdf: 333819 bytes, checksum: 874bd84df24904564983037ae33eee2f (MD5)
  • description.provenance : Submitted by Deanne Bruner (deanne.bruner@oregonstate.edu) on 2014-07-09T18:10:08Z No. of bitstreams: 1 BogartKathleenPsychologyPeopleAreAll.pdf: 333819 bytes, checksum: 874bd84df24904564983037ae33eee2f (MD5)

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