“People are all about appearances”: A focus group of teenagers with Moebius Syndrome

Citeable URL: https://ir.library.oregonstate.edu/concern/articles/c247dv01d

Descriptions

Attribute Name	Values
Creator	Bogart, Kathleen R.
Abstract	This focus group study examined the social experiences of 10 adolescents ages 12-17 with Moebius Syndrome, a rare condition involving congenital facial paralysis. Content analysis revealed five themes: social engagement/disengagement; resilience/sensitivity; social support/stigma; being understood/misunderstood; and public awareness/lack of awareness of Moebius Syndrome. Compared to previous research on adults with Moebius Syndrome, adolescents were more likely to experience bullying and social strain. Like adults, teenagers displayed resilience and communication skills. Greater public awareness is key to reducing the stigma associated with this condition, and social skills programs should be developed to support those who struggle with social functioning. Keywords: Stigma, Adolescence, Rare diseases, Moebius Syndrome, Facial paralysis
Resource Type	Article
DOI	https://doi.org/10.1177/1359105313517277
Date Available	2014-07-09T18:11:11+00:00
Date Issued	2014-01-14
Citation	Bogart, K. R. (2015). “People are all about appearances”: A focus group of teenagers with Moebius Syndrome. Journal of Health Psychology, 20(12), 1579-1588. doi:10.1177/1359105313517277
Journal Title	Journal of Health Psychology
Journal Volume	20
Journal Issue/Number	12
Declaração de direitos	Copyright Not Evaluated
Publisher	SAGE Publications
Peer Reviewed	Yes
Language	English [eng]
Replaces	http://hdl.handle.net/1957/50226