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Using the international classification of functioning, disability and health to expand understanding of paralysis in the United States through improved surveillance

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https://ir.library.oregonstate.edu/concern/articles/t148fj947

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Abstract
  • Background: Surveillance on paralysis prevalence has been conceptually and methodologically challenging. Numerous methods have been used to approximate population-level paralysis prevalence estimates leading to widely divergent prevalence estimates. Objective/hypotheses: To describe three phases in use of the International Classification of Functioning, Disability and Health (ICF) as a framework and planning tool for defining paralysis and developing public health surveillance of this condition. Methods: Description of the surveillance methodology covers four steps: an assessment of prior data collection efforts that included a review of existing surveys, registries and other data collection efforts designed to capture both case definitions in use and prevalence of paralysis; use of a consensus conference of experts to develop a case definition of paralysis based on the ICF rather than medical diagnostic criteria; explanation of use of the ICF framework for domains of interest to develop, cognitively test, validate and administer a brief self-report questionnaire for telephone administration on a population; and development and administration of a Paralysis Prevalence and Health Disparities Survey that used content mapping to back code items from existing national surveys to operationalize key domains. Results: ICF coding led to a national population-based survey of paralysis that produced accurate estimates of prevalence and identification of factors related to the health of people in the U.S. living with paralysis. Conclusions: The ICF can be a useful tool for developing valid and reliable surveillance strategies targeting subgroups of individuals with functional disabilities such as people with paralysis and others.
  • Keywords: Surveillance, Paralysis, ICF, Functional definition of disability
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  • Fox, M. H., Krahn, G. L., Sinclair, L. B., & Cahill, A. (2015). Using the international classification of functioning, disability and health to expand understanding of paralysis in the United States through improved surveillance. Disability and Health Journal, 8(3), 457-463. doi:10.1016/j.dhjo.2015.03.002
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  • 8
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  • 3
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  • This publication was made possible through grant number 90PR3001 from the Administration for Community Living and prior grant number HHS1U59DD000838 from the Centers for Disease Control and Prevention.
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file details KrahnGloriaPHHSUsingInternationalClassification.pdf 07/26/2017 公开
file details KrahnGloriaPHHSUsingInternationalClassification_SupplementaryData.pdf 07/26/2017 公开