Honors College Thesis
 

A qualitative analysis of identity and stigma among people with facial differences

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https://ir.library.oregonstate.edu/concern/honors_college_theses/cr56n870v

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  • There is a lack of research surrounding people with facial differences (FD), particularly on how their FD identity is interwoven with their other identities and how they relate to it. With a note on how it relates to their experience of stigma. This study is designed to utilize the narratives provided by adults (n = 16) with a variety of different FDs (both congenital and acquired) through semi-structured interviews to create a framework around FD identity. This study utilizes semantic inductive qualitative thematic analysis to formulate the framework after transcribing and coding the data. The main themes of this study mapped well onto Bronfenbrenner's ecological model. There are three main code groups: personal, social, and chronological. In the personal code group, intersections with other identities, interpretations of identity, identity expression, attitude towards changing expression of FD identity, and meaning and benefit finding were all explored. The social code shows how the FD identity influenced participants' relationships, bonds, and social experiences. It contains sub-themes of others' awareness, family, close relationships, group relationships, social responsibility, changing FD identity expression for social acceptance, observed and combated disability spread, decreased sociality, FD as a social tool, online, and interaction with stigma. The chronosystem's central theme shows how the FD identity was viewed and changed throughout the generations, particularly regarding stigmatization. Overall, participants show how the FD identity is related to their overall identity personally, socially, and across time.
  • Keywords: facial difference, identity, disability, stigma
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