Graduate Thesis Or Dissertation
 

End-of-life caregiving

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https://ir.library.oregonstate.edu/concern/graduate_thesis_or_dissertations/8p58pk032

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  • Over the past decade, changes in health, economic, and social policies have shifted the dying process out of hospitals and into the community. This exploratory,hypothesis-generating study investigated positive and negative caregiving as well as care management resources of community-based end-of-life caregivers and how they related to caregivers' personal growth following the death of the care receiver.Retrospective, cross-sectional survey data were collected from 144 respondents in Lane County, Oregon who reported having provided care for at least one terminally ill person. Data were analyzed using an adapted stress process conceptual framework.Factor analyses determined whether internally consistent measures could be obtained from two new indices related to end-of-life care: a caregiving inventory and a care management resource index. Hierarchical multiple regression analysis examined the mediational relationships between care management resources and positive and negative caregiving in predicting personal growth of end-of-life caregivers following bereavement.Factor analyses verified that the investigator-developed caregiving inventory was comprised of two conceptually distinct factors, negative caregiving and positive caregiving, and the care management resource index was comprised of a single factor,care management resources. Factor scores were generated as a last step in factor analyses. Hierarchical multiple regression analysis was then undertaken with personal growth as the dependent variable. Control variables (age, gender, ethnicity, education,income, and level of caregiving) were entered first, the care management factor score was entered next, and the positive and negative caregiving factor scores were entered last. As predicted, higher levels of care management resources were associated with more positive caregiving and higher levels of positive caregiving were associated with greater personal growth. There was no relationship between negative caregiving and personal growth, nor was negative caregiving related to care management resources.The regression analysis did not support a mediational model.Results from this study add to the evidence that positive and negative aspects of caregiving should be treated separately and demonstrate the influence of positive perceptions of end-of-life caregiving experiences on long-term bereavement outcomes.Findings suggest the value of interventions designed to promote and enhance positive aspects of the end-of-life caregiving experience.
  • Keywords: personal growth, bereavement, end-of-life, positive caregiving, caregiving
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